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General Resources
Information about Genomics:
http://www.ornl.gov/TechResources/Human_Genome/
Office of Biological and Environmental Research of the U.S. Department of Energy
Office of Science:
This site provides general information about the Human Genome Project and related
research.
http://www.ncbi.nlm.nih.gov/genome/guide/human/
National Center for Biotechnology Information, National Library of Medicine,
National Institutes of Health, Department of Health and Human Services:
This site provides general information about genes and genomics.
http://www.nature.com/genomics/
Nature Publishing Group:
A comprehensive web resource devoted to genomics.
Information about General Research
Ethics:
http://www.nlm.nih.gov/pubs/cbm/hum_exp.html
National Library of Medicine, National Institutes of Health, Department of Health
and Human Services:
This website includes information about ethical issues in research with human participants
including consent and confidentiality.
http://ohrp.osophs.dhhs.gov/humansubjects/guidance/45cfr46.htm
Department of Health and Human Services, National Institutes of Health, Office
for Protection from Research Risks:
Federal policy for the protection of human research subjects.
http://www.nih.gov/sigs/bioethics/nih_third_party_rec.html
National Institutes of Health:
Protection of Third Party Information in Research: Recommendations of the National
Institutes of Health to the Office for Human Research Protections, December 7, 2001.
http://www.nih.gov/sigs/bioethics/named_populations.html
National Institutes of Health:
Points to consider when planning a genetic study that involves members of named populations.
http://researchethics.mc.duke.edu
Duke University:
Education and resources involving research ethics including web-based modules on
topics including protection of research subjects and informed consent for research.
Information about Ethics in Genomics:
http://www.ornl.gov/TechResources/Human_Genome/elsi/elsi.html
United States Department of Energy Office of Science, Office of Biological and
Environmental Research, Human Genome Program:
This website addresses many ethical, legal, and social issues involved
in genomics research such as gene testing and legislation involving
privacy.
http://www.genome.gov/10001618
National Human Genome Research Institute:
This website contains information about the Ethical, Legal, and Social Implications
Research Program which is a part of the National Human Genome Research Institute
including program goals and publications.
http://www.hugo-international.org/hugo/ethics.html
Human Genome Organization Ethics Committee:
The HUGO ethics committee addresses many issues relating to ethics and intellectual
property such as human genomic databases and the patenting of DNA sequences.
Organizations and Agencies:
http://www.fda.gov/cber/index.html
Center for Biologics Evaluation and Research
http://www.cdc.gov/genomics/default.htm
Center for Disease Control and Prevention: Office of Genomics and Disease Protection
http://www.fda.gov/cder/
Center for Drug Evaluation and Research
http://www.doe.gov/engine/content.do
Department of Energy
http://www.gene.ucl.ac.uk/hugo/
Human Genome Organization
http://www.ncbi.nlm.nih.gov/
National Center for Biotechnology Information
http://www.genome.gov/
National Human Genome Research Institute
http://www.nih.gov/
National Institutes of Health
http://ohrp.osophs.dhhs.gov/
Office for Human Research Protections
http://www.unesco.org/
United Nations Educational, Scientific, and Cultural Organization
http://www.who.int/
World Health Organization
http://www.wma.net/e/
World Medical Association
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